Resources Introduction
The Dementia web site is arranged to make it easy to access dementia related information and services. This resources page draws together key contact information, and also includes links to some resources that are not found elsewhere on the site.
You may also use find our search page useful.
Dementia Books Online
You can also download a copy of Who cares? from the Department of Health website. This well researched NHS publication provides "information and support for the carers of people with dementia", and has been found to be very helpful by many carers. Unfortunately it seems to be quite frequently out of print, so although this is a large document to download having it available as an online resource is very useful.
- The National Dementia Strategy
published by the Department of Health February 2009. Download National Dementia Strategy - Becoming a Carer
A Booklet about looking after someone with dementia produced by the Mental Health Foundation.
Download for free or call 020 78031100 to be sent a free copy - Coping with Dementia
A Handbook for Carers written by Kate Fearnely published by NHS Health Scotland.
Download your free copy - Who Cares?
Information and support for the carers of people with dementia published by the Department of Health. Download your free copy - Now Where Did I Put My Glasses?
Caring for Your Parents – A Practical and Emotional Lifeline. Written by Jackie Highe published by Simon & Shuster UK Ltd. Find out more - Caring for a Parent in Later Life
Getting Support, and Coping with the Financial, Legal and Emotional Issues. Written by Judith Cameron published by Life Guides. Find out more - Contented Dementia
24-hour Wraparound Care for Lifelong Well-being. Written by Oliver James published by Vermilion.
Find out more - Living in the Labyrinth
A personal journey through the maze of Alzheimer's. Written by Diana McGowin published by Elder Books.
Find out more - Caring for your Elderly Parent
Overcoming common problems. Written by Julia Bunton-Jones published by Sheldon Press.
Find out more - Elder Rage
How to Survive Caring for Aging Parents. Written by Jacqueline Marcell published by Impressive Press.
Find out more - Losing Clive to Younger Onset Dementia
One Family’s Story. Find out more - What Shall We Do With Mother?
How to Manage When Your Elderly Parent Is Dependent on You. Written by Rosie Stal and Richard Craze published by White Ladder Press. Find out more - Learning to Speak Alzheimer’s
The New Approach to Living Positively With Alzheimer’s Disease. Written by Joanne Koenig-Coste published by Vermilion. Find out more - Understanding Dementia
Introduction to the subject of dementia intended for use by all health professionals involved in the provision of care. Written by Alan Jacques published by Churchill Livingstone. Find out more - The Simplicity of Dementia
A Guide for Family and Carers. Written by Huub Buijssen published by Jessica Kingsley Publishers.
Find out more - Challenging Behaviour in Dementia
A Person-Centred Approach. Written by Graham Stokes published by Speachmark Publishing Ltd.
Find out more - And Still The Music Plays
Stories of People With Dementia. Written by Graham Stokes published by Speachmark Publishing Ltd.
Find out more - Alzheimer’s and Other Dementias
Explanations about the different types and causes of dementia. Written by Harry Cayton, Dr. Nori Graham, Dr. James Warner published by Class Publishing.
Find out more - Remind Me Who I Am, Again
A look at the question of identity, memory and autonomy that dementia raises. Written by Linda Grant published by Granta Books. Find out more - Dancing with Dementia
My Story of Living Positively With Dementia. Written by Christine Bryden published by Jessica Kingsley Publishers. Find out more - Caring for Someone with Dementia
This book shows how to cope and seek further help as well as containing detailed information on the dementia illness itself and what to expect in the future. Written by Jane Brotchie published by Age Concern Books. Find out more - What If It's Not Alzheimer's
A Caregiver's Guide to Dementia. Written by Lisa and Gary Radin published by Prometheus Books (this book is specifically about frontotemporal dementia).
Find out more - You Are Words
Beautiful, insightful and touching poems. Written by John Killick published by Hawker (compiled from the words of people with dementia) Openings: Dementia Poems and Photographs by J Killick and C Cordonnier published by Hawker. Find out more - The Importance of Food and Mealtimes in Dementia Care
The Table is Set. Written by Grethe Berg with foreward by Aase-Marit Nygard published by Jessica Kingsley Publishers. Find out more - Dementia: Walking not Wandering
Fresh Approaches to Understanding and Practice. Edited by Mary Marshall published by Hawker.
Find out more - Keeping Busy
Handbook of Activities for Persons with Dementia. Written by James R Dowling published by The Johns Hopkins University Press. Find out more - Reminiscence Theatre
Making Theatre from Memories. Written by Pam Schweitzer published by Jessica Kingsley Publishers. Find out more
Free PDF Downloads
Books - Dementia web's reading list
Personal Life History Booklet
The Personal Life History Booklet is a wonderful resource, prepared by an Occupational Therapy Student, for Alzheimer's Australia.
"This booklet has been designed to collect the unique social and life history of an individual with dementia. This life history will help individualise the care of the person with dementia and maintain their identity. It will also help people caring for the individual to know them and develop strong relationships with them."
Interpreters and Translation
Alzheimer's Disease International has an extremely helpful web page, of contact details and web links for Alzheimer associations in around 75 different countries around the world. This information is likely to be useful for people living with dementia in Oxfordshire whose first language is not English, and also useful for people who live locally, but have friends or family members living with dementia abroad.
Further information about local support for people from ethnic minorities is available on our support page.
Resources for Children and Teenagers
A number of resources about dementia and/or caring, aimed specifically at children and teenagers are linked to from our children and young people page.
Guideposts Trust
Guideposts Trust provides locally based services, to find out more you can contact the Dementia Information Service team on their advice line 0845 120 4048.
Alzheimer's Society
Alzheimer's Society provide care and research for people with dementia, their families and carers. Becoming a member of the Alzheimer's Society is a great way to keep up to date with developments in the dementia field, and hear how other people manage living with dementia. Society Members regularly receive a free copy of the excellent "Living with Dementia" magazine through the post. The Alzheimer's Society offers free membership to carers and people with dementia: simply tick the box for this on the membership application form.
The Alzheimer's Society also produces a range of publications to enable care homes, and other providers, to promote good practice in dementia care.
Age UK England
Information and factsheets are available on the Age UK England website. Freephone information line 0800 00 99 66 (every day 7am-7pm)
SPECAL
SPECAL (Specialised Early Care for Alzheimer's) is a person-centred dementia care charity undertaking ground-breaking work with older people who have dementia of the Alzheimer's type.
SPECAL helps clients to live contentedly by associating their long-term memories with their current experience.
SPECAL also works with the carers, families and friends of people who have dementia, and professionals working in the field of dementia who have an interest in the SPECAL approach.
Find out more by visting there website www.specal.co.uk or contact them via email on help@specal.co.uk
NHS Direct
If you are unsure about whether something needs medical attention, or would like general health advice, you may find it useful to visit the NHS Direct website.
The NHS Direct website is part of the National Health Service, and aims to provide high quality health information and advice.
If you are feeling unwell you can telephone NHS Direct on 0845 4647 for individual advice and information, given by nurses, 24 hours a day.
Public Services
Direct.gov.uk is a national government web site providing comprehensive information on public services, (including benefits).
Voluntary Organisations
Voluntary organisations - this Alzheimer's Society factsheet is an extremely helpful list of many different national organisations who can provide all kinds of support and help; it includes links to their websites.