Dementia Web - Dementia Information Resource for Oxfordshire

DementiaWeb - Dementia Information Resource for Oxfordshire

Who Can I Talk To?

Need Someone to Talk To?

When you are caring for someone who has dementia, there are many times that you may feel you need someone to talk to. This may be because you need advice about something, or simply that you just need a listening ear from somebody who understands your situation.

For ease of reference we have divided the information on this page into three groups: online support first, then local contacts, with national helplines further down the page.

Support Online

The Alzheimer's Talking Point is an online discussion forum that provides support for people with dementia and their carers, by allowing you to "chat" over the internet with other people who understand what it's like for you.

Local Contacts

Carers Support Workers

Carers Support Workers work within a number of organisations across Oxfordshire. They can visit you at home, speak on the phone, or meet at a mutually convenient venue, such as one of the carers centres. They are there just for you, to listen to you, and perhaps offer some practical solutions to some of the situations you encounter.

The Carers Support Workers from the following organisations all fulfil a similar role, but have slightly different areas of expertise:

Alzheimer's Society Support Workers

The Alzheimer's Society local branches have specialist Support Workers, who are familiar with the challenges dementia brings. They can help you access information you may need, as well as providing an understanding ear when you need someone to talk to.

Oxfordshire Branch

Carers Support Worker: Stella Inston

Support Worker hours:
9.00am to 5.00pm, Tuesday to Friday

Tel.: 01865 876508
Fax: 01865 876508
Mobile: 07796 441203

Email: stellainston@hotmail.com

Covers: Oxfordshire, Thame, Wallingford, Henley, Didcot and surrounding areas

Carers Support Worker: Maggie Jarrott

Support Worker hours:
9.00am to 5.00pm, Tuesday to Friday

Tel.: 01865 876508
Fax: 01865 876508
Mobile: 077716 1041

Email: maggiejarrott@hotmail.co.uk]

Covers: North West Oxfordshire, Bicester, Witney, North Oxford       and surrounding areas

Abingdon & Vale of White Horse Branch

Support Worker: Sue Smith
Carer Support Worker
The Alzheimer's Society
Abingdon and Vale of White Horse Branch
Abingdon Community Hospital
Abingdon
Abingdon Alzheimer's Club: 01235 205 407
Mobile: 07833 952 514

Banbury and District Branch
Banbury and District Branch covers Banbury, Chipping Norton, and the surrounding Oxfordshire villages.

Support Worker: Frances Claydon
Telephone  01295 811144 (24 hr answer machine picked up by part time outreach worker)
Email: francesclaydon.alzheimerssoc@googlemail.com

Clive Project Support Workers

The Clive Project, an Oxfordshire Charity for younger people with dementia, has two teams of support workers:

  • One-to-One Service: a team of trained support workers provide individual sessional support to younger people with dementia.
  • Family and Friends Service: two dedicated support workers offer information, and practical and emotional support, to family and friends of younger people with dementia.

Contact details:

The Clive Project
PO Box 315
WITNEY
OX28 1ZN

Tel.: 01993 776295

Carers Centres Carers Support Workers

The Carers Centre Support Workers advise people who are caring for people with all different sorts of disabilities. As well as offering general support they can help you with form filling, and to access specific funds that are there to help you with caring or to help you take a break.

Oxfordshire Carers Centres:

North and West Oxfordshire Carers Centre
27 Horsefair
BANBURY
OX16 0AE

Tel.: 01295 264545
Fax: 01295 270660

Open Mondays, Wednesdays, Thursdays and Fridays 10-4
Closed Tuesdays
Telephone help Mon, Wed, Thu, Fri 9am to 5pm

Email: carers@ccnwoxon.org.uk
Web.: www.oxoncarers.org.uk (North & West Oxfordshire)

Oxford Carers Centre
174a Cowley Road
OXFORD
OX4 1UE

Tel.: 01865 205192
Fax: 01865 242569

South and Vale Carers Centre
3-5 Lydalls Road
DIDCOT
OX11 7HX

Tel.: 01235 510212
Fax: 01235 512198

Email: carers@svcarers.org.uk
Web.: www.svcarers.org.uk (South & Vale)

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Support Groups

A number of support groups exist, in and around Oxfordshire, that enable carers and family members of people with dementia to meet and talk to other people who know what it's like for them.

In the list below you will find details of carers support groups in Oxfordshire for those specifically caring for someone with dementia. Further details of programmes and activities are available from the contacts shown. (A list of Support Groups in PDF format (59KB) is available for printing.)

Where When Contact
Abingdon
Abingdon Community Hospital, Marcham Rd
2nd & 4th Thursdays each month 1.30 to 4.00pm Sue 07813 627091
Sarah 01235 205404
Banbury
Carers Centre, 27 Horsefair
1st & 3rd Fridays each month 10.30 to noon

Frances 01295 811144

Bicester
Julier Centre, Coker Close
2nd & 4th Tuesdays each month 10.30 to noon Judy 01295 264545
Maggie 0771 611041
David 01865 455816
Chipping Norton **
The Fox Hotel, Market Place, Chipping Norton
2nd and 4th Mondays of month 10.30 to noon

Frances 01295 811144

Cowley *
Manzil Resource Centre, Cowley Road
Most Friday mornings 10.30 to noon David 01865 455816
Stella 07796 441203
Didcot *
Ridgeway Day Hospital, 99 Wantage Road
1st Thursday of month noon to 1.30pm Brenda 01865 455816
Stella 07796 441203
Henley *
Christ Church Centre, Reading Road
3rd Wednesday of month 2.00 to 4.00pm Margreet 01491 576503
Tom 01491 637453
Thame *
Wykeham Park D.H., East Street
1st Wednesday of month 1.00 to 3.00pm Maggie 07716 11041
Brenda 01865 455816
Wantage
The Health Centre, Mably Way
Fortnightly on Fridays from 07.11.08
1.30 to 3.30pm
2009: First meeting 16th January and fortnightly thereafter
Sue 07833 952514
Alison 01235 810575
Wheatley*
United Reformed Church Hall, Crown Square, Wheatley, Oxford

2nd and 4th Thursday of the month
1.30 pm to 3 pm.

Liz or Stella 01865 876508

Witney *
Methodist Church, High Street

1st and 3rd Mondays each month
2.00 - 3.30pm

Linda 01993 202100
David 01865 455816
Maggie 07716 11041

Woodcote
Community Centre, Woodcote
2nd Wednesday of month 2.00 to 4.00pm Mary or Rory 01491 637469

* Note 1: It may be possible at these locations to arrange for the person with dementia to be cared for whilst carers attend the group.

** Note 2: This group is for people with any form of dementia AND those who care for someone with dementia.

Note 3: Friends and family of younger people with dementia are welcome at any of the support groups above, but can also access The Clive Project Exchange. Exchange meetings offer an informal and friendly opportunity to share experiences and expertise with others. Venues vary; for the current programme please contact:

Sue Hosty
Tel.: 01865 821699
Mobile: 07813 654077
Email: suehosty@thecliveproject.org.uk, or

Diana Letchford
Tel.: 01993 891955
Email: dianaletchford@thecliveproject.org.uk, or

Anna Eden
One to One Co-ordinator
The Clive Project
Tel.: 01865 794311

In addition to the groups listed above, the Carers Centres also run carers support groups, and social events, across the county. These are for all carers, not just for people who are caring for someone with dementia.


GP

As well as talking to your GP about general health matters, you should also talk to your GP if you feel you or the person you care for may be becoming depressed.

The GP has a number of options available to them for treating depression, these not only include medication, but also referral to services such as counselling.

It is best to have depression treated as soon as possible, as being depressed will make living with dementia more difficult: whether you have dementia yourself or are a carer.

CPN

People with dementia are likely to receive regular support from a Community Psychiatric Nurse (CPN). CPNs visit people with mental health problems and dementia in their own homes to carry out assessments, and provide treatment, care and support. They can advise people with dementia and their carers on ways of coping, and ways of improving their health and quality of life.

Memory Services Coordinator

David Janes is the Oxfordshire Memory Services Coordinator, employed by Age Concern, but working within the Memory Clinics team. Can advise on all aspects of Memory Services, including advice about getting an appointment at memory clinic. Can also assist with general advice and information related to dementia.

Contact:
David Janes or Brenda Green, Memory Clinic and Carers Support Worker Service Coordinators
Tel.: 01865 455816

Dementia Information Service for Carers (DISC)

The Dementia Information Service for Carers (DISC) is designed to assist individuals and organisations caring for older people with dementia.

DISC is a telephone helpline and can provide information on: dementia; locally available community services; options for residential care; what to look for in a care home; training resources; setting up relatives groups in a care home.

DISC is a telephone helpline currently available only through the Guideposts‘s Warwickshire office. We aim to revive DISC Oxfordshire very soon.

 

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National Helplines

Admiral Nurse Helpline

Admiral Nurses (London based), are specialist dementia nurses. They can provide practical advice, emotional support, information and the benefit of their skills and experience.

Advice line: 020 7874 7210
Open Tuesdays only, 10.00am to 4.00pm

Gay and Lesbian Carers Network

Lesbian women and gay men caring for a partner, relative or friend with dementia face many challenges - not only those discussed on other pages of this site, but possibly many more.

Caring for a person with dementia can cause feelings of isolation. This can be exacerbated by people not understanding different lifestyles.

The Alzheimer's Society Gay and Lesbian Carers Network is a telephone helpline service staffed by gay men and lesbian women. These trained and skilled volunteers are able to offer a listening ear.

Contact details:

Lesbian and Gay Carers Network
Alzheimer's Society
Gordon House
10 Greencoat Place
London SW1P 1PH

Tel.: 0207 3060606

If you would like to talk to someone, phone:

Roger: 01843 220932
Arthur: 01273 628047
Bruce: 01865 847471

Email: gaycarers@alzheimers.org.uk
Web.: www.alzheimers.org.uk/gay_carers

Samaritans

Samaritans provides confidential emotional support, 24 hours a day for people who are experiencing feelings of distress or despair, including those which may lead to suicide. You don't have to be suicidal to call. Samaritans are there for you if you're worried about something, feel upset or confused, or you just want to talk to someone.

Tel.: 08457 90 90 90
Web.: www.samaritans.org

Samaritans also have local branches which you can find online, or in the phone book.

Elder Abuse Helpline

Action on Elder Abuse provides a national, freephone helpline for anyone concerned in any way about the abuse of older people.

Elder abuse is defined by Action on Elder Abuse as: 'A single or repeated act or lack of appropriate action, occurring within any relationship where there is an expectation of trust, which causes harm or distress to an older person'.

Tel.: 0808 808 8141 (Freephone helpline)
Open 10.00am to 4.30pm, Monday to Friday

Web.: www.elderabuse.org.uk

The Relatives and Residents Association

The Relatives & Residents Association is a national organisation working to promote the well-being of older residents of care homes through:

  • Support & Information via the phone helpline 020 7359 8136
  • Carrying out project work that focuses on specific issues
  • Influencing policy and practice
  • Working with local relatives & residents groups in care homes

More information is available on The Relatives & Residents Association website.

Helpline: 020 7359 8136
Web.: www.relres.org

Alzheimers Scotland

Alzheimers Scotland also provide a helpline for carers (0808 808 3000) which operates 24 hours a day. Carers from England are welcome to telephone them.

Cruse

When somebody who has dementia dies the grief experienced by their families and friends can be a complicated thing. You may feel you had already lost parts of the person you loved. You may feel relief. You may feel guilt. It may be months later before it really sinks in that the person you loved has died.

Cruse Bereavement Care provides counselling and support to enable anyone bereaved by death to understand their grief and cope with their loss.

Day by Day helpline: 0870 167 1677
Young Person's helpline: freephone 0808 808 1677

Further Information and Factsheets

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